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HEPATOBLASTOMA FOUNDATION BOARD: Stacey & Rachel - Communication
Trina - Fundraising
Glenn Goss - Web / Technology
Richard Clark - CureSearch Liason
Richard & Glenn - Research
Open - Education
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The Foundation exists for three strategic purposes: We exist to raise money for RESEARCH: We are working strategically with Curesearch and COG (Children's Oncology Group) to provide money specifically for Hepatoblastoma research. This includes funding clinical trials, statistician review, and specific Hepatoblastoma research studies.
We exist to SUPPORT familes affected by Hepatoblastoma: We will offer support and first hand advice for parents, and families who's loved ones have been affected directly by Hepatoblastoma. This will be done through the Hepatoblastoma Forums, where parents can post questions or concerns to other parents who have been through this battle with the disease.
We exist to EDUCATE the world: We hope that through this site, we can educate the World about a rare cancer that does not get much attention, but affects hundred's of lives every year. We hope to provide all of the latest information and research in the area of Hepatoblastoma
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We are the Hepatoblastoma Foundation; a group of people whose lives have been personally impacted by this particular childhood cancer. We are a non-profit foundation partnering with Curesearch and committed to finding a cure for hepatoblastoma through funding of research. Our group is devoted to empowering those affected by hepatoblastoma through education and support and dedicated to raising awareness of this rare and devastating disease. |
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